Carol Marak
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Rare Patient Voice Pays for Your Opinion!

3/30/2022

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An estimated 300 million people worldwide will be affected by a rare disease at some point in their lives. ​Rare Patient Voice invites all patients and caregivers to have their voices heard by participating in paid surveys, interviews and online communities! The link to sign up and start talking to the right people:  Join Rare Patient Voice Surveys and Get Paid.  

It’s free, and Rare Patient Voice accepts rare and non-rare diagnoses! 

You’ll earn $100 per hour for participation in your studies. Rare Patient Voice pays by check to ensure that patients can use the compensation in any way they wish. 


In the video, Pam Cusick, Senior VP of Rare Patient Voice hopes to expand Rare Patient Voice’s panels to include all patients and caregivers who want to share their opinions and impact their disease category.

Pam answers questions: 
  • Can you tell us what Rare Patient Voice is? 
  • How does Rare Patient Voice work?
  • Who sponsors the surveys?

Watch the video and learn

Get paid for your opinion! Patients (16+) and caregivers (family, friends) of any disability, disorder, syndrome, illness or condition have the opportunity to express their opinions through surveys and interviews to improve medical products and services.

Why Join Rare Patient Voice?
Who knows your journey and experiences better than you? We put you in touch with researchers who are developing products and services that can help you and others with your condition. These researchers need the input of patients to develop products and services that have a significant impact on patients’ lives. Over the past nine years, Rare Patient Voice has paid patients over $8 million. 
How will I be paid?
You’ll earn $100 per hour for participation in your studies. We pay by check to ensure that patients can use their compensation in any way they wish.

Sign up today and Get Paid!

Learn about my book: SOLO AND SMART! 
Find SOLO AND SMART on Amazon! 

​
Thank you for reading! Carol


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    Carol Marak, the go-to authority on topics of solo aging! 

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  • Home
  • PRE-RETIREMENT ROADMAP
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